My name is Eric Basmajian. I am 32 years old, and I have been a FibroFighter for over 20 years. I work as an economist and consultant to asset management firms, but my most important role is as a patient advocate helping fellow fighters navigate their journey with Fibrolamellar carcinoma.

My battle with Fibrolamellar began in 2005 when I was just 12 years old. I underwent a liver resection to remove a single tumor, and for the next 18 years, I remained cancer-free. Life moved forward — I built a career, got married to my wonderful wife Francesca, and settled in Westchester, New York with our miniature dachshund, Gus.

In 2023, Fibrolamellar returned. This time it was more advanced and inoperable. After initial treatments failed, I found FibroFighters. That discovery changed everything. Through the extraordinary care and support led by Dr. Kent, Tom Stockwell, and the entire FibroFighters Foundation, I endured more than 40 rounds of chemotherapy, immunotherapy, and targeted Y90 procedures. In October 2025, I became a surgical candidate and underwent a living donor liver transplant and Whipple procedure. I was given the gift of life by my courageous sister-in-law and by the FibroFighters community. None of this would have been possible without them.

In my role as a Patient Advocate, I am committed to educating newly diagnosed patients about Fibrolamellar and sharing the hard-won knowledge I’ve gained about navigating the complex medical world to achieve the best possible outcomes. Since my recurrence, I have spent countless hours coordinating care across multiple disciplines — oncology, endocrinology, hepatology, interventional radiology, and surgery. I understand how overwhelming this journey can be, and I’m here to help guide others through it.

I’m grateful for my experiences, for the FibroFighters community, and I’m always willing to share my journey with a fellow fighter.

Danielle Duran Baron was born in Rio de Janeiro, Brazil. She lives in Maryland with her husband, Blake, their two sons, Joaquim and Gabriel, and their cat, Luna. Danielle believes in miracles and in the healing powers of storytelling and human connection.

At the age of 28, she was diagnosed with fibrolamellar hepatocellular cancer, an experience that affected her deeply. Five years later, she dealt with a recurrence and has been cancer–free ever since. As a two–time fibro survivor, Danielle has used her experience to raise awareness about the disease and to advocate for patients in different parts of the world.

Danielle is the Vice President for Marketing Communication and Industry Relations at the School Nutrition Association. She holds a master’s degree in journalism, an MBA in marketing and is fluent in Spanish and Portuguese. Danielle is a certified association executive (CAE) and an active member of the American Society of Association Executives (ASAE), where is the immediate past chair of the Government Relations and Advocacy Professionals Advisory Council. She is also the President of the Board of Luminus, a Maryland–nonprofit helping immigrants thrive in their communities. When not working or volunteering, Danielle can be found at her sons’ soccer games, where she is the loudest parent on the sidelines.

Laura was diagnosed with fibrolamellar at the age 25 while living and working abroad in Asia. She navigated health systems across two countries and in two languages, providing her a unique global perspective of the challenges of facing cancer as a young adult.

Today she remains “no evidence of disease” and credits the support of the FibroFighters Foundation with helping her get to where she is today. Laura is thrilled to be a part of the Foundation as a Patient Advocate. She believes in the power of community engagement and education and hopes to foster a strong patient community. She manages the website, edits the newsletter, and hosts patient-only virtual meet ups.

Beyond her work with FibroFighters, Laura enjoys practicing yoga, going to the beach, and traveling around the world. She lives in Chicago and works in education. 

Hi, My name is Terra. I am a wife and mother of two beautiful girls. I was diagnosed with Fibrolamellar in July 2001 and have been Fighting, Surviving, and Thriving with this rare cancer for the past 21 years and counting. Living with this disease has been challenging to say the least however it has shown me a perspective on life I feel blessed to have. I see beauty in the everyday and live with a heart full of gratitude.

Through my roller coaster journey of ups and downs I have learned numerous skills that were necessary in dealing with my care and treatment. I understand, far too well, how absolutely vital it is to be your own advocate and learned that saving my own life was now my full–time job. Through all my surgeries, treatments, clinical trials and more it ultimately led me to a lifesaving living donor liver transplant. One that I was told was impossible.

I believe that my purpose is to share my experience with others to provide HOPE against what seems to be unbeatable odds. With an undeniable anchor of support from family and this amazing Fibro Fighters team I am still Fighting and Thriving with Fibrolamellar.

Jansher is 20 years old currently living in New York. He was diagnosed at age 19 with Fibrolamellar.  Jansher was born in England London and moved to New York five years ago. His passion in life has been football, (equivalent to our game of soccer) and food. Jansher loves to watch different cooking shows and try to recreate the recipes at home.  He is a diehard fan of the Arsenal football club in London.  

Jansher has a wicked sense of humor and strong mental fortitude. Jansher recently had a Whipple procedure and liver resection performed simultaneously. Even in the ICU when he was semi-conscious, he had football on and he kept score. 

Jansher dreams to attend college one day. He wants to live his life to the fullest and hopefully defeat fibrolamellar. Never at any point during this journey, has Jansher ever feel that he may lose this battle, he has always known that he will do everything he can to build his strength and to one day, overcome this disease.

Jansher wishes to help others by and creating fibrolamellar awareness and give hope to others who may need encouragement and support. Jansher is looking forward to helping others as a patient advocate for FibroFighters and possesses natural charisma and confidence about himself, along with a contagious smile and attitude wining the hearts of many.  

My name is Corey Robison. I am 27 years old, and a I am a two–year FibroFighter. By trade I am a service industry worker, though my real passion in life is music. I’ve played drums in a number of bands throughout my life, and it has continued to provide me with a sense of hope and purpose through my experience as a cancer patient.

In my role as a Patient Advocate with the FibroFighters Foundation, my goal is to educate and empower both patients and their families about Fibrolamellar carcinoma and the nuances of the world around it. Since my diagnosis, I have spent countless hours researching and speaking with those knowledgeable about this disease. I’ve built a large network in doing so, and I am happy to share as much as possible with my fellow fighters.

Hi everyone, my name is Paris Adams and I’m a patient advocate for the FibroFighters foundation. I was diagnosed with Fibrolamellar in January of 2022 and I’m actively fighting it to this day. As a patient, I hope to help other patients find the very best care and have access to as many resources possible to make informed decisions about their treatment and beat this cancer. I hope to connect with many of you. Cheers.

“In my cancer journey, instead of saying Why Me I said try Try Me.”

Hi, there my name is Amanda, my spouse, Paris, is a Fibrofighter and has been fighting the good fight since January 11, 2022. I’m excited to be apart of FibroFighters and to help support other caregivers.

Emily has been advocating for her son Rudy since his diagnosis at age 12, 2 1/2 years ago.  Emily is a choral conductor, music teacher, and vocalist, and her favorite place ever is the woods. 

Sadia Siddiqui is a British-Asian creative director and branding expert who moved from London to New York eight years ago. During her university years, she received the Charles Wallace Award and was later recognized as a nominee for the Asian Women of Achievement Award. With an extensive career spanning television production and global branding, Sadia is the creator of the fashion platform Fashion Parade and recently launched her streetwear brand, NACS.

Following her son Jansher’s diagnosis with Fibrolamellar Carcinoma (FLC), Sadia began a profound new chapter as a dedicated champion for FLC awareness. Working alongside her son, she now leverages her decades of expertise in branding and design to support the FLC community and FibroFighters through visual storytelling. She is committed to increasing the recognition of this rare cancer and ensuring that patients and families have the support they need to navigate this journey together.

Extensive Retail Management background for over 40 years until our son was diagnosed with Fibrolamellar.  During the past 8 years I became a full-time student learning everything I could about Fibrolamellar to try to help our son Robert and now leveraging that knowledge to help as many Fibrolamellar patients and families as possible.  In late 2019 founded FibroFighters Foundation and became Executive Director after completing the 501c3 process on May 29th of 2020.  In this role I utilize my extensive management of people and resources to oversee all day-to-day operations performed by our FibroFighters team.  

Elise McKenna is a seasoned professional with an extensive background in Finance and Healthcare. She has over ten years of experience working in the financial industry, including serving as a Vice President at Credit Suisse and Principal at the investment firm Kohlberg Kravis Roberts & Co (KKR). During her tenure in Finance, she raised over $50 billion in capital for public and private companies, focusing on the Healthcare sector. 

Elise is deeply committed to improving healthcare outcomes and has pursued her passion for medicine through education and practical experience. She received her undergraduate degree from Georgetown University in Finance and Biology and completed her Post-Baccalaureate at Columbia University. She has worked with various Healthcare organizations, including Mount Sinai Hospital, Maimonides Medical Center, Medpace, PTC Therapeutics, and Coherus, gaining valuable experience in the field. 

Elise’s is excited to bring this experience and her passion for healthcare to her role with the FibroFighters Foundation. Her financial expertise and knowledge of the healthcare industry will help guide the FibroFighters Cancer Foundation towards our mission of improving the health and well-being of the Fibrolamellar community we serve. 

Currently, Elise is set to attend medical school at Sidney Kimmel Medical College at Jefferson in the fall.