For half a decade, FibroFighters Foundation and xCures have worked side by side to build something rare cancer research desperately needs: a living, growing patient registry that turns real FLC experiences into real research data. We will be reintroducing the FLC Dashboard to the community soon providing real-time deidentified, fully HIPAA compliant data from our IBR approved study. Great partnerships are built on trust and results, and this one continues to expand what we know about Fibrolamellar Carcinoma, inform care, and connect the FLC community to a future with more options.
Your data has power. Your story has an impact.
If you or a loved one has been affected by fibrolamellar carcinoma, your story belongs in this registry. Five years strong, and we’re just getting started.
Thank you to every patient and family who has made this possible.
Learn how to join the registry: https://xcures.com/details-fibrolamellar/
Left: Timothy Stuhlmiller, PhD, Vice President of Scientific and Medical Affairs at xCures. Right: Dr. Paul Kent, Medical Director of FibroFighters Foundation