Contact Us

No One Fights Alone

FibroFighters Foundation Patient Navigation Service is a free and confidential resource that serves the entire Fibrolamellar community by providing individualized information and support to patients and their caregivers affected by Fibrolamellar at any part of their fight.  

Our Medical Director Dr. Paul Kent encourages you to reach out to him to help guide your care by working with your local medical teams. We can discuss many options which you may not be aware, like benefits of enrolling in the xINFORM platform, functional profile testing at the Nagourney Cancer Institute or new programs from BostonGene and Natera.  

Our Patient and Caregiver Advocates serve as Navigators to help answer your questions, provide information about treatment guidelines, help you find qualified doctors, and connect you with others in the Fibrolamellar community who have shared experiences. Additionally, we can assist you with finding discounted lodging and travel options around several major medical centers, understanding financial assistance programs, and supporting clinicians with appeals to insurance companies. 

Please complete the form below so we can begin helping you or your loved one immediately.  

Request Help Form

Terms and Policies

Policy Acceptance

After you click the Submit button below, your information will be sent to a FibroFighters Patient Navigator. Our Navigators are here to assist you Monday-Friday from 8AM-5PM ET and will respond to your request within 1-2 business days.

We look forward to talking with you soon!

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