Additional Contribution Options

This section of our Privacy Policy relates specifically to donors. 

This Donor Privacy Policy applies to the collection of information, including information collected on our website. By submitting your information to us or any of our staff, you consent to the terms and conditions of the policy and to our processing personal information for the purposes stated below. 

PERSONAL INFORMATION 

“Personal Information” is information that identifies you personally, such as your name, address, telephone number, email address, birthdate, or other identifying characteristic.  We collect and store personal information that you share with us or that is available from public sources. Below are examples of ways in which we may collect your information: 

• When you request information via one of the email addresses identified on our website, or otherwise contact us in person, by phone, or email, with an inquiry. 
• We may collect your name, email address, telephone number, and other contact information if you register for and/or attend an event. 
• We may collect information such as your name, email address, telephone number, and payment information when you contribute, either on our website, over the phone, by mailing in a check, or any other way you might make a contribution. 
• Information you give us on Fund Agreements or other forms 
• Information about your charitable gifts and grant transactions with us (such as your fund balance, grant history, and parties to transactions). 

• Responses to donor interest surveys 
• Responses to donor demographic surveys 

The above list provides a sample of ways personal information may be collected by the FibroFighters Foundation (FF). From time to time, we may collect personal information from you in ways not described above. 

FF restricts access to personal information to those employees who need to know that personal information to provide our services to you. 

Use and Disclosure of Personal Information 

FF respects and values the trust you place in us when you give us your personal information and is committed to maintaining the confidentiality of our donors’ personal information. 

• We will not trade, share, or sell a donor’s personal information, collected on the website or through any business activities, with anyone else, except under the following circumstances. Donors can opt to be anonymous if they do not wish to have their information shared. 

• Contact information for donors is shared with the fundholder for stewardship purposes. 
• Information will be shared with governments, law enforcement or other legal entities as required by law. 

• We will only share donor mailings on behalf of other organizations once the donor has given FF specific permission to do so. 

• Donors may opt in to share testimonials with FF, which may be featured on FF’s Blog, website, or other publications. 
• Donor names may be featured in recognition lists with other donors at their associated giving level in FF publications such as the website or annual report. Upon making a donation to FF, the donor will be prompted to select their anonymity preference, thus determining their preference to be featured in such publications. 
• We will collect payment information, billing address, and other information necessary to process a donation or event registration. 
• We will use your information to comply with the law or in the good faith belief that such action is necessary to conform to the requirements of the law or comply with legal process served on us, protect, and defend our rights, or act in urgent circumstances to protect the personal safety of others. 
• We will use your personal information to protect against potential fraud. We may verify with third parties the information collected while processing a gift, event registration or other donation. If you use a credit card, we may use card authorization and fraud screening services to verify that your card information and address match the information that you supplied to us, and that the card being used has not been reported lost or stolen. 

Except as described in this Donor Privacy Policy or at the time we request the information, we do not otherwise disclose your personal information to any third parties. Further, we will not sell or trade your personally identifiable information to any third parties. 

Security of Information 

FibroFighters Foundation (FF) is committed to protecting the security of your personal information and will take reasonable security precautions to help protect your personal information from unauthorized access, use, or disclosure. However, we cannot guarantee the security of our database, nor can we guarantee that the information you supply won’t be intercepted while being transmitted to us over the internet. 

Contact Information 

If you have any questions, comments, or concerns about FF Donor Privacy Policy and FF’s privacy and security practices, you can contact Laura Gregory our Secretary. 

Phone: 951 553-9058 
E-mail Address: contactus@fibrofighters.org 
Mailing Address: 
Fibrofighters Foundation 

P.O. Box 891149  

Temecula, CA 92589 

Changes to FibroFighters Foundation’s Privacy Policy 

Because we will continue to implement new technologies and improve the features and services we provide, FF Privacy Policy is subject to change. For that reason, we encourage you to periodically review the FF Privacy Policy. 

November 29, 2022  

Publication 78 provides a partial listing of organizations that have been recognized by the IRS as eligible to receive tax-deductible contributions. For information on other organizations that have been recognized by the IRS as tax-exempt organizations, you may call IRS Customer Service at 877-829-5500. You can also contact us through any of the other methods described in Publication 557.

A contributor can also check an organization’s exemption letter, which states the Code section that describes the organization and whether contributions made to the organization are deductible.

The IRS sometimes recognizes a group of organizations as tax-exempt if they are affiliated with a central organization. This avoids the need for each of the organizations to apply for exemption individually. For more information, see Publication 4573, Group Exemptions. Subordinate organizations exempt under group rulings are not separately listed in Publication 78; see Eligible Donees Generally Not Listed in Publication 78.

DISCLAIMER: This information is not intended to provide legal or accounting advice, or to address specific situations. Please consult with your legal or tax advisor to supplement and verify what you learn here.